Search Results : Search

Project Search of Springfield Ohio

 Posted by on October 6, 2014 at 12:46 PM  Uncategorized
Oct 062014
Project Search of Springfield Ohio

With October being National Disability Employment Awareness Month here is some promising news for people with disabilities in Ohio’s Miami Valley area. Springfield Regional Medical center of Springfield, OH is employing people with disabilities through an internship program called Project SEARCH. Learn more about Project SEARCH through the Springfield-Clark Career Technology Center website. Or visit the Project SEARCH Facebook Page. Make sure to watch the video below. View the President’s Proclamation regarding the National Disability Employment Awareness Month 2014.

Author: Timothy A Carey Publication: DisabilityVoice  Date: 10-06-2014

Video Credits: 2 News WDTN YouTube Channel Date: 10-03-2014


Jul 152012

Deaf since he was 3, Kanevsky has hardly let his disability get in the way of progress — or success. Born in the Soviet Union, he eventually emigrated, first to Israel, and then to the United States, and went on to become a research staff member in the speech and language algorithms department at IBM’s Thomas Watson Research Center.

On Monday, Kanevsky and 13 others were honored at the White House in a ceremony to celebrate those “leading the fields of science, technology,  engineering, and math for people with disabilities. View Entire Article

Author:    Publication: CNet News Original Date:  May 9, 2012

Sep 162011

from disability

A set of new bills introduced
in Congress would establish first-ever centers for studying Down syndrome and
boost research of the chromosomal disorder, a move supporters say will correct a
funding inequity.

Since 2000, the Children’s
Health Act has specifically authorized research for several conditions including
autism, epilepsy, asthma and fragile X syndrome, but not Down

Now, two bills introduced late
last week by U.S. Rep. Cathy McMorris Rodgers, R-Wash., could change
that. … View Entire Article

Publication:  Down Syndrome Daily

Aug 232010
Could MRI be better than muscle biopsy in measuring disease progression and therapy effectiveness in Duchenne muscular dystrophy?  
The use of magnetic resonance imaging (MRI) as an assessment tool in boys with Duchenne muscular dystrophy (DMD) is being studied by former MDA grantee Krista Vandenborne, through a $7.5 million grant from the National Institutes of Health (NIH). The goal of the study is to assess whether MRI technology can be used as a precise, noninvasive measure of muscle tissue, gauging both disease progression and the effectiveness of therapies tested in children with DMD. . . . More ArticleByQuest – Amy Labbe – May 17, 2010

Mar 102010
The experimental drug ataluren … did not meet its primary end point.
The biopharmaceutical firm PTC Therapeutics announced March 3 that ataluren, its experimental drug for certain forms of Duchenne (DMD) and Becker (BMD) muscular dystrophy, although safe and well tolerated, failed to meet its primary end point within the 48-week duration of the phase 2b trial. That end point was an improvement in how far boys with DMD or BMD could walk in six minutes. More Article

By Quest Magazine- Staff -March 3, 2010

Need Your Insights on Telehealth and Telemedicine

 Posted by on October 20, 2016 at 8:14 PM  Care, Medical
Oct 202016

The National Disability Forum is an open conversation where members of the public, community leaders, and Social Security employees come together to talk about the disability programs.

Next National Disability Forum will Focus on Telehealth and Telemedicine

Telehealth includes a variety of ways to use video and other technology to enhance healthcare and related information delivery.  Telemedicine involves clinical services provided by interactive communication, most commonly a video, between a patient and a practitioner at different locations.

You can share your insights on these question by posting right here on our blog or at ourIdeaScale online tool, or by registering to attend the forum on October 27.

View Full Article

Author:  Publication: Social Security Blog   Date: 10-11-2016

Jul 222016

New York’s first medical marijuana dispensary opened in January, over a year after the state became the 23rd to legalize the drug for medical use and the fifth to approve Parkinson’s disease (PD) as a condition for its use. This news understandably led the patient and physician communities to ask a number of research and clinical questions about marijuana and Parkinson’s.

View Full Article


Author: Rachel Dolhun, MD Publication: Michael J Fox Foundation Foxfeed Date: 02-01-2016 

Apr 282016

On Monday, April 25 the Muscular Dystrophy Association (MDA) along with MDA clinical experts testified before an FDA advisory committee. They express optimism for this new drug, eteplirsen, helping people with Duchenne Muscular Dystrophy (DMD) and it opening doors for treating more genetic disorders. Eteplirsen is an Exxon shipping drug which is designed to skip certain parts of defective genes to allow the genes to still express a protein. In DMD this drug therapy would basically turn DMD into a mild form of Backers Muscular Dystrophy. Backers Muscular Dystrophy is already much more mild than Duchenne Muscular Dystrophy. This treatment would help thousands of people live a healthier and longer life.
View Full Article
Publication: MDA Outreach Date: 04-25-2016

3 Videos Below 


Long-term Care 2.0 Omni-direction

 Posted by on April 6, 2016 at 5:39 PM  Care
Apr 062016

In the new Long-term care 2.0 members receiving care will be able to pick between total self-direction or totally managed care for each service they receive.
In my opinion it shouldn’t be self-direction vs. total managed care for each service. It should be about people with disabilities and frail elderly being people not a number.
When I was looking for a massage therapist I was having a difficult time finding one. This is because I am self-directed on IRIS. Iris would not even give me a list of massage therapist vendors already signed up with IRIS. I did find a vendor eventually, that I Trust, after weeks of searching, emailing, and telephone calls. I imagine if I was on family care I would not have been able to choose the massage therapist because it would be totally managed.

In my opinion there is no reason care with regard to be able to choose or having no choice: the dynamic instead. It should not be total self-direction or total managed care. Instead the conversation should go something like this.

Care Team: You have been approved for massage therapy.

Member or Member Representative: That’s great.

Care Team: Do you have a massage therapist in mind?

(Member Can Yes or No)

Member: Responds Yes (care team says OK lets do the paperwork to see if they can be a vendor.

Member: Responds No (care team says OK we will work with you to find to you a massage therapist we can also give you a list of possible vendors that are already on our payroll for you to review. ) At this point, for any point, the member should be able to have any type of help in choosing the massage therapist.

By having this all or nothing self-direction or total managed care dichotomy it refuses to treat people with disabilities and frail elderly as actual people.  Members shouldn’t have to decide one or the other, we should just be treated as individuals that might want to be involved and other times we just might need a little bit more help. There are all types of scenarios like I talk about above. I call this omni-direction at any time you can change how much self-direction based on conversations not paperwork. The whole process of directing a person’s life should be flexible enough to allow for anywhere between self-direction and total managed care depending on the persons needs and opinions.

Omni-direction would be much more simple than having to add two different processes for directing member cares. This dynamic process would most likely save even more money. Having a conversation instead of all or nothing regarding self-direction simplifies the process.