Timothy Carey

Tim is creator and chief operator of the Website DisabilityVoice. He has Duchenne Muscular Dystrophy, which has progressed to the point where he is on a ventilator 24/7 and unable to move except for his finger tips and slight neck movements. He has a two year degree in Computer Programming from UW Center Fox Valley in Menasha Wisconsin. He also has a four year B.A. in Math / Computer Science from Lawrence University in Appleton Wisconsin. Tim has a small business out of his home creating web sites called Golden Fire Computer Production. Tim is very active with DisabilityVoice and contacting legislators. He received an Abilities Award from Celebrating Abilities and a Lifetime Achievement Award for Wisconsin from the Muscular Dystrophy Association. Both awards were received in 2011. Tim is also active in a group Rockcliffe University and Virtual Worlds Best Practices in Education (VWBPE) doing programming which connects website data to the various virtual worlds including, but not limited to Second Life.

Truth, Lies and Tracheostomies

 Posted by on February 11, 2017 at 6:30 PM  Awareness, Care
Feb 112017
 
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When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.

But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”

When a person’s overall quality of life is no longer acceptable, that’s certainly a valid choice. But a trach and vent shouldn’t be ruled out if quality of life problems are due in large part to respiratory problems.

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Author: Diane Huberty Publication: MDA Quest Magazine Date: 06-30-2007

Jan 272017
 
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The Able Act allows many people with disabilities to save money for unexpected or needed items that make their lives better. Items must be from an approved Category. For instance, assistive technology and transportation are two categories, but there are more categories. l People with disabilities can sign on to able act programs from out of their state where available. This Webinar will talk about the 4 newest states to start Able Act Programs KY, MI, OR, and VA.

WEBINAR ON:

January 31, 2017

2:00 PM-3:30 PM

Webinar Information 

 

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Your Hope for 2017

 Posted by on December 27, 2016 at 5:57 PM  Inspire
Dec 272016
 
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My intention with this article was to be a continuation of contributor Jason Hubal’s hope articles after his passing, but this year there was a seeming lack of interest. Jason passed away earlier this year. My hope for 2017 is for DisabilityVoice to help more people with disabilities and for DisabilityVoice website to grow in usability & number of users. If you missed the deadline for giving your hope, there is still time to give your hope for an article in the new year. Check out the inspirational quote for December 2016 at the end of this newsletter for some inspiration. People who don’t necessarily have a disability, but know people with disabilities are also invited to give your hope or inspiration. The new deadline is Thursday, January 19, 2017.

Zubits Magnetic Shoe Closures

 Posted by on November 21, 2016 at 7:00 AM  Assistive Tech, AT
Nov 212016
 
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This is exactly what it sounds like, magnets to close your shoes instead of Velcro or ties.  Zubits Magnetic Closures come in various sizes and strengths depending on foot size and type of activity.  These seem like something that would be useful to many people with disabilities.  There are some Zubit knockoffs as indicated by various internet reviews so make sure you try actual Zubits.

Zubits Website

Author: Timothy A Carey  Publication: DisabilityVoice 

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Nov 202016
 
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Mary Lynn Larsen and her Husband Mike Larson started 101 Mobility of Northeast Wisconsin in June of 2015, but this story does not start there.  Larson’s have two children with the genetic disorder Prader-Willi Syndrome.

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Author: Timothy A Carey  Publication: DisabilityVoice 

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Please Give Your Hope

 Posted by on November 18, 2016 at 3:55 PM  Inspire
Nov 182016
 
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For about three years now Jason Hubal of DisabilityVoice has included an article on what people hope for in the next year in the DisabilityVoice Newsletter. It was Jason and also my feeling that the hope of others drive us forward to continue the work at DisabilityVoice.  In this tradition and in memory of the late Jason Hubal I am including a similar article this year in the DV Newsletter for December 2016. Please everyone let me know what you are hoping for in 2017 or if you want what you have accomplished in 2016. Or any New Year’s resolution. Please e-mail me, Timothy Carey, at tcarey@DisabilityVoice.us by Wednesday, December 12 midnight.

Please include your name, age, and where you are from along with your statement.  Also include your disability if you have one.  And let me know if you want to include your disability in the article and if you want to be anonymous.

Author: Timothy A Carey  Publication: DisabilityVoice Date: 11-18-2016 

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