Truth, Lies and Tracheostomies

 Posted by on February 11, 2017 at 6:30 PM  Awareness, Care
Feb 112017
 
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When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.

But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”

When a person’s overall quality of life is no longer acceptable, that’s certainly a valid choice. But a trach and vent shouldn’t be ruled out if quality of life problems are due in large part to respiratory problems.

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Author: Diane Huberty Publication: MDA Quest Magazine Date: 06-30-2007

Nov 202016
 
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Mary Lynn Larsen and her Husband Mike Larson started 101 Mobility of Northeast Wisconsin in June of 2015, but this story does not start there.  Larson’s have two children with the genetic disorder Prader-Willi Syndrome.

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Author: Timothy A Carey  Publication: DisabilityVoice 

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Nov 022016
 
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The ABLE National Resource Center, managed by National Disability Institute (NDI), is excited to congratulate the State of Michigan on the launch of its “MiABLE” program. MiABLE is a national program, offering enrollment to qualified individuals with disabilities both in Michigan and throughout the country.

MiABLE allows qualified individuals with disabilities to save up to $14,000 a year in an ABLE account without jeopardizing their eligibility for federally-funded means tested benefits, such as Supplemental Security Income (SSI) and Medicaid. The funds in the account can be used for disability-related expenses that assist the beneficiary in increasing and/or maintaining his or her health, independence or quality of life.

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Webinar: ABLE Funds: Understanding the Investment Side of ABLE November 15, 2016. REGISTER 
Author: Publication:  Able National Resource Center Date: 11-02-2016 

Oct 262016
 
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Jennifer Malcore has been appointed to serve as the next Assistant Deputy Secretary at the Department of Health Services (DHS). Malcore replaces Bill Hanna, who recently announced he has accepted a position outside of state service.

“Bill has been a great asset to our team and we wish him the very best in his new endeavor,” DHS Secretary Linda Seemeyer said,…

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Publication: Wisconsin Department of Health Services  Date: 10-19-2016 

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Oct 212016
 
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Engaging in social situations in a virtual environment may significantly improve real-world interactions for young people with autism, new research suggests.

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Author: Shaun Heasley  Publication: Disability Scoop  Date: 09-27-2016

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Need Your Insights on Telehealth and Telemedicine

 Posted by on October 20, 2016 at 8:14 PM  Care, Medical
Oct 202016
 
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The National Disability Forum is an open conversation where members of the public, community leaders, and Social Security employees come together to talk about the disability programs.

Next National Disability Forum will Focus on Telehealth and Telemedicine

Telehealth includes a variety of ways to use video and other technology to enhance healthcare and related information delivery.  Telemedicine involves clinical services provided by interactive communication, most commonly a video, between a patient and a practitioner at different locations.

You can share your insights on these question by posting right here on our blog or at ourIdeaScale online tool, or by registering to attend the forum on October 27.

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Author:  Publication: Social Security Blog   Date: 10-11-2016

Oct 172016
 
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Sometimes life changes course quickly. Justin Vedder was only 37 when he was diagnosed with young-onset Parkinson’s, and his wife Ashley was eight months pregnant with their third child.

A former University of California, Berkeley quarterback, Justin was typically social and outgoing. But like many newly-diagnosed people with Parkinson’s, he bega

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Author: Laura Amann Publication: Fox Feed blog  Date: 10 -14-2016

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Oct 162016
 
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New study results from Austrian biotech AFFiRiS support continued development of its vaccine against the key Parkinson’s protein alpha-synuclein. Today the company announced its “boost” follow-up study— funded with a $1.04 million grant from The Michael J. Fox Foundation — showed that an additional dose is safe and can elicit antibodies against alpha-synuclein.

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Author: Maggie McGuire Kuhl Publication: Fox Feed blog  Date: 09-07-2016

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Oct 152016
 
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A federal judge in Fort Lauderdale, Fla. has tossed out of court alawsuit filed three years ago by the U.S. Department of Justice that claimed Florida health administrators had acted with “deliberate indifference to the suffering” of children with disabilities who were being warehoused in nursing homes for lack of more appropriate accommodations with family members or in the community.

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Author: Carol Marbin Miller, The Miami Herald Publication: Disability Scoop Date: 09-26-2016 

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Social Security Launches GeoMaps

 Posted by on October 12, 2016 at 10:20 AM  Benefits, Disability Blogs, Medical
Oct 122016
 
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“Social Security provides financial benefits, tools, and information to help support you throughout life’s journey. We’re excited to announce the launch of geospatial mapping at Social Security! Our new initiative, GeoMaps, complements our Open Government and Open Data Initiatives…”

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Author:   Publication: Social Security Matters blog Date: 09-26-2016