Truth, Lies and Tracheostomies

 Posted by on February 11, 2017 at 6:30 PM  Awareness, Care
Feb 112017
 
Share

When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.

But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”

When a person’s overall quality of life is no longer acceptable, that’s certainly a valid choice. But a trach and vent shouldn’t be ruled out if quality of life problems are due in large part to respiratory problems.

View Full Article

Author: Diane Huberty Publication: MDA Quest Magazine Date: 06-30-2007

Aug 122016
 
Share

Being the sibling of a special needs individual comes with a lot of “extras” and sometimes this can be difficult to navigate on your own.

This is a list of books people who have a sibling with special needs might be interested in.

View Full Article

Author: Kendall Rayburn  Publication:  Friendship Circle Date: 08-04-2016

 Comments Off on 10 Great Books if You Have a Sibling with Special Needs  Tagged with: ,
May 202016
 
Share

Come August, I will be a junior at Grand Valley State University in Allendale, Michigan. I am a writing major, and am involved in several extracurricular activities, mostly in the performing arts. I also happen to have Asperger’s Syndrome, having been diagnosed at the age of eight. I will be honest, it has not been an easy road for me at college.

View Full Article

Author: Max Granitz Publication: Friendship Circle Blog Date: 05-16-2016

 Comments Off on How I Dealt with Having Asperger’s Syndrome in College
May 152016
 
Share

While most people have no symptoms as all, Zika causes mild illness in some. However, the Centers for Disease Control and Prevention (CDC) has established a link between Zika infection during pregnancy and serious birth defects and other poor pregnancy outcomes. We also know that there can be other serious neurological impacts in some people who are infected with Zika.

You Full Article

Publication: The White House Date: 05-12-2016 

 

 

 Comments Off on Protect Yourself from ZIKA Virus – The White House
Mar 142016
 
Share

Needed: Human service professionals to fill a national shortage

Register today for a 7 p.m. Eastern time March 15 informational webinar about our online programs in special education and chat live with an advisor.

View Full Article
Publication: Ball State University

 Comments Off on Master of Arts in Applied Behavior Analysis (ABA) with an Emphasis in Autism  Tagged with: ,
Jan 022016
 
Share

Brooklyn Brumfield was 16 when she was given a grim prognosis.

She would likely spend the rest of her life in treatment and would need physical therapy.

View Full Article
Author: Nora Olabi Publication: msn.com Sourced Publication: Houston Chronicle

Date: 12-25-15

 Comments Off on Woodlands teen overcomes rare disease to walk again
Dec 022015
 
Share

So The Mighty teamed up with the Muscular Dystrophy Association to ask their Facebook community what they wished others knew about the disease. Here’s what they had to say:

1. “It is not MS!” —Melanie Carson

View Full Article
Author: Elizabeth Brentano Publication: The Mighty Date: 11-23-15

 Comments Off on 21 Truths People With Muscular Dystrophy Wish Others Understood