Truth, Lies and Tracheostomies

 Posted by on February 11, 2017 at 6:30 PM  Awareness, Care
Feb 112017

When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.

But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”

When a person’s overall quality of life is no longer acceptable, that’s certainly a valid choice. But a trach and vent shouldn’t be ruled out if quality of life problems are due in large part to respiratory problems.

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Author: Diane Huberty Publication: MDA Quest Magazine Date: 06-30-2007

Aug 122016

Being the sibling of a special needs individual comes with a lot of “extras” and sometimes this can be difficult to navigate on your own.

This is a list of books people who have a sibling with special needs might be interested in.

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Author: Kendall Rayburn  Publication:  Friendship Circle Date: 08-04-2016

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May 202016

Come August, I will be a junior at Grand Valley State University in Allendale, Michigan. I am a writing major, and am involved in several extracurricular activities, mostly in the performing arts. I also happen to have Asperger’s Syndrome, having been diagnosed at the age of eight. I will be honest, it has not been an easy road for me at college.

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Author: Max Granitz Publication: Friendship Circle Blog Date: 05-16-2016

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May 152016

While most people have no symptoms as all, Zika causes mild illness in some. However, the Centers for Disease Control and Prevention (CDC) has established a link between Zika infection during pregnancy and serious birth defects and other poor pregnancy outcomes. We also know that there can be other serious neurological impacts in some people who are infected with Zika.

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Publication: The White House Date: 05-12-2016 



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Mar 142016

Needed: Human service professionals to fill a national shortage

Register today for a 7 p.m. Eastern time March 15 informational webinar about our online programs in special education and chat live with an advisor.

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Publication: Ball State University

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Jan 022016

Brooklyn Brumfield was 16 when she was given a grim prognosis.

She would likely spend the rest of her life in treatment and would need physical therapy.

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Author: Nora Olabi Publication: Sourced Publication: Houston Chronicle

Date: 12-25-15

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Dec 022015

So The Mighty teamed up with the Muscular Dystrophy Association to ask their Facebook community what they wished others knew about the disease. Here’s what they had to say:

1. “It is not MS!” —Melanie Carson

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Author: Elizabeth Brentano Publication: The Mighty Date: 11-23-15

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