Truth, Lies and Tracheostomies

 Posted by on February 11, 2017 at 6:30 PM  Awareness, Care
Feb 112017

When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.

But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”

When a person’s overall quality of life is no longer acceptable, that’s certainly a valid choice. But a trach and vent shouldn’t be ruled out if quality of life problems are due in large part to respiratory problems.

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Author: Diane Huberty Publication: MDA Quest Magazine Date: 06-30-2007

Need Your Insights on Telehealth and Telemedicine

 Posted by on October 20, 2016 at 8:14 PM  Care, Medical
Oct 202016

The National Disability Forum is an open conversation where members of the public, community leaders, and Social Security employees come together to talk about the disability programs.

Next National Disability Forum will Focus on Telehealth and Telemedicine

Telehealth includes a variety of ways to use video and other technology to enhance healthcare and related information delivery.  Telemedicine involves clinical services provided by interactive communication, most commonly a video, between a patient and a practitioner at different locations.

You can share your insights on these question by posting right here on our blog or at ourIdeaScale online tool, or by registering to attend the forum on October 27.

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Author:  Publication: Social Security Blog   Date: 10-11-2016

Oct 152016

A federal judge in Fort Lauderdale, Fla. has tossed out of court alawsuit filed three years ago by the U.S. Department of Justice that claimed Florida health administrators had acted with “deliberate indifference to the suffering” of children with disabilities who were being warehoused in nursing homes for lack of more appropriate accommodations with family members or in the community.

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Author: Carol Marbin Miller, The Miami Herald Publication: Disability Scoop Date: 09-26-2016 

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Sep 012016

Pokémon Go is a free location-based app developed by Niantic for both iOS and Android devices. It encourages users to explore their environment by using augmented reality while simultaneously trying to capture as many Pokémon as possible.

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Author: Kendall Rayburn  Publication: Friendship Circle Date: 07-21-2016 

Aug 122016

Being the sibling of a special needs individual comes with a lot of “extras” and sometimes this can be difficult to navigate on your own.

This is a list of books people who have a sibling with special needs might be interested in.

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Author: Kendall Rayburn  Publication:  Friendship Circle Date: 08-04-2016

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Jul 112016

Wisconsin Department of Health Services Interim Secretary Tom Engels announced the Family Care and IRIS(Include, Respect, I Self-Direct) programs launched today, July 1, as scheduled in Rock County. The expansion of these programs to Rock County helps ensure more than 400 residents get the long-term care services and support they need, and will put an end to the waiting list for those services within three years.

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Publication: Department of Health Services Wisconsin News Release Date: 07-01-2016

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May 242016

Motor fluctuations are “off” times, when medication — namely levodopa (the “gold standard” treatment for Parkinson’s) — is not working optimally and Parkinson’s symptoms …

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Author: Rachel Dolhun, MD Publication: The Michael J Fox Foundation FOXFEED Blog Date: 05-23-2016


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May 172016

A year and a half after legislation paved the way for people with disabilities to save without jeopardizing their government benefits, the first accounts are poised to become available.

A handful of states are expected to open their so-called ABLE programs this summer.

Nebraska is the first to announce a launch date — June 30

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Author: Michelle Diament  Publication: Disabilities Scoop  Date: 05/10/2016

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Long-term Care 2.0 Final Concept Paper

 Posted by on April 6, 2016 at 6:07 PM  Care
Apr 062016

The Department of Health Services of Wisconsin (DHS) has released two documents in the last couple weeks regarding Long-term Care 2.0. The first document is what they call Family Care 2.0 / IRIS 2.0 Concept Paper. This document is the second and final version of what DHS has planned for long-term care in Wisconsin. This document must now be approved by the Joint Committee on Finance. The legislative session in Wisconsin ended on April 1, but I’m not sure how this will affect the vote of the Joint Committee on Finance. The second document is contains frequently asked questions relating to the concept paper. To keep informed on changes regarding Wisconsin Long-term Care 2.0 visit the web site that DHS has setup for this issue.
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View Concept Paper Frequently Asked Questions
DHS Website

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