DRW Listening Dec. 06 2009


Disability Rights Wisconsin
Listening Session in Oshkosh Wisconsin and Timothy Carey’s Account
Written by Timothy A Carey- Dec. 06, 2009

On Friday December 4, 2009 I went to a listening session in Oshkosh Wisconsin for Disability Rights Wisconsin (DRW). The meeting started at around 4:30 PM and went to about 6:40 PM. This is a meeting where the public can bring their concerns to DRW. For more information on the state funded and a non-profit organization go to www.disabilityrightswi.org www.hearingloop.org. This link will be provided in the DisabilityVoice Assistive Technology Section.tcarey@DisabilityVoice.usadvocacy page for Private Duty Nursing on DisabilityVoice

The main concerns brought forward by the community was assistive technology for people that are hearing impaired, inclusion for special needs children, employment for a woman with a cognitive disability wanting to help children with similar problems, cuts to private duty nursing, and, counting people with disabilities in the 2010 census.

There is a technology that allows people with hearing aids to tap into the microphone system in a room. More and more public places are providing this technology called hearing loop. You can find out more by going to

There was a woman at this listening session who told her story about growing up with a cognitive disability. She would like to share her years of experience with others. What better way than working with children with similar disabilities as her own. She would like to work in a school setting with children. She does not have a teaching degree, but a degree cannot give someone the many years of experience this woman has. She has tried working with the Department of Vocational Rehabilitation to find employment, but they don’t want to entertain this idea. If anybody has ideas on how she can get into this field of work without a college degree, please let me know (Timothy Carey) at

There were mothers of children with autism, downs syndrome, and other special needs at this meeting. They are concerned about their children not being integrated enough into the Oshkosh school system and feeling their children are in segregation. Why do they treat children with special needs like second class and even third class citizens? I would like to ask the Oshkosh school board if they would like to go back to the 1950s policy of segregating the races. In the 1950s concerns were raised about how integrating the races would increase costs to the schools. I don’t think integrating people with disabilities costing more has any more to thing to do with the topic than it did in the 1950s for integration. I hope these parents who took DisabilityVoice business cards will contact me because I have some ideas on how they can help the Oshkosh school district started a inclusion program for children with disabilities. And Disability Rights Wisconsin seems very interested in helping out this issue also.

I brought up the topic of Health Services trying to cut various aspects of pay for private duty nurses and private duty nurses who care for people on respiratory life support. I am on a ventilator 24/7, but I am more concerned for those who have private duty nursing as their only care. Even more concern is that legislators in the Wisconsin Assembly I told about these cuts had no idea they were being made. With a one party controlled Wisconsin legislature Health Services has have been given authority to make the cuts they want to bring us out of debt. Only one out of the three cuts proposed by Health Services were made, but Health Services would like to discuss the topic again in January 2010. What people don’t realize is that if nurses leave private duty nursing, some people with disabilities may be forced into institutions where there is no room. And if only 2 people on respiratory life support end up in a nursing home because of these cuts the cost of their care will be more than the savings from these cuts. Disability Rights Wisconsin basically said if someone does end up in an institution because of these cuts they would like to go to bat for them. This could mean possible legal action. There is an

This listening session for Disability Rights Wisconsin was very informative and I believe it was productive for Disability Rights Wisconsin. Hopefully some of the concerns the public has will be addressed because of this meeting. Another concern of the public was that many people with disabilities still do not know about Disability Rights Wisconsin. Please let everyone know about Disability Rights Wisconsin.